New resource for PD patients and carers
Posted in Neurology News on 29th May 2013
Britannia launches innovative and interactive resource for PD patients and carers
World Parkinson’s Day 2013 saw the official launch of theparkinsonhub (www.theparkinsonhub.com), an online community based on sharing the latest news and best practice about Parkinson’s disease (PD), with an emphasis on and around mid to late stage PD.
Developed by Britannia Pharmaceuticals, theparkinsonhub is a dynamic, evolving resource committed to providing practical help and advice to maximise patient well-being. It is regularly updated on a range of key areas of life that cover both motor and non-motor symptoms of PD.
This is accompanied by the launch of a complementary PD Quality of Life interactive resource (www.pdqualityoflife.com) which enables people with PD to identify and understand those areas in their life most impacted by their condition. They are then empowered to have a more informed discussion about their well-being and unique needs with their healthcare professionals (HCPs) and care teams.
At the heart of theparkinsonhub and the PD Quality of Life resource is the recognition that no two people’s experience of PD is the same. However, with the right support and information it is possible for those with PD to live with confidence and control. Both have been designed in conjunction with HCPs to help provide this information and to be an external resource that HCPs can confidently direct their patients towards.
“Where theparkinsonhub excels is in consistently focusing on the person first and their PD second. By addressing the impact on a person’s well-being in terms of non-motor as well as motor symptoms, it has a much more holistic approach to meeting people’s needs with regards to their quality of life. From an HCP perspective, the more someone understands their unique PD journey, the easier it is to have an informed discussion about how best to address their unique quality of life challenges and to help them live in confidence and control,” says Anne Martin, a Parkinson’s nurse.
Anne Martin has been a Parkinson’s nurse for 11 years with 20 years’ wider experience working in neurology, including PD.