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Nerve Tumours UK

Posted in Industry News on 22nd Aug 2021

Nerve Tumours UK funds a unique Specialist Support Network to help the 26,500 plus people, living in the UK, who are diagnosed with Neurofibromatosis (NF), along with their carers, families, and wider support network. We provide support, advice and information for people with NF and the medical professionals involved in their care, via the Specialist Support Network, which comprises regionally based nurses, a national helpline, clinical guidelines, regional information days, medical guidelines and leaflets. 

Neurofibromatosis is one of the most common neuro-genetic conditions that causes tumours to grow on nerve endings and with many associated medical, physical and psychological conditions eg Scoliosis, and 60% have learning disabilities. People live in constant pain, are vulnerable and often isolated. More people are diagnosed with NF than those with Hereditary Muscular Dystrophy, Huntingdon’s Disease and Cystic Fibrosis combined, yet few, including medics, have heard of the condition.

Find out more on the website.