World Encephalitis Day 2026 will be marked on 22 February with the launch of a new global awareness campaign designed to improve early recognition of encephalitis and encourage prompt treatment. Led by Encephalitis International, this year’s initiative introduces the FLAMES acronym, intended to help both the public and healthcare professionals identify key symptoms of the…
Category: Charity
My Neuro Survey exposes gaps in services
Just one in three say NHS care meets their needs: Neurological Alliance survey exposes gaps in services for people affected by neurological conditions People living with neurological conditions across England are being failed by a health system that is struggling to meet even basic needs, according to new findings from My Neuro Survey – the…
Ley Sander stands down as Medical Director of the Epilepsy Society
Ley Sander is to stand down as Medical Director of the Epilepsy Society, a position he has held since 2012. During his time at the charity, he has consistently been ranked as one of the top epilepsy specialists in the world. Ley is a professor of neurology at UCL but has worked at the Epilepsy…
MP support for neuro boosted by Parliamentary Neuro Reception
On Thursday 16 January, 35 MPs or their representatives from across the UK attended the Parliamentary Neuro Reception hosted by The Neurological Alliance – the largest number of MPs or representatives to attend an Alliance event in its 30-year history. The event was being held to raise awareness of neurological conditions in Parliament, asking Parliamentarians…
King’s Parkinson’s Charitable Fund launches
Twenty years ago, Professor K Ray Chaudhuri and colleagues wrote in ACNR about the often neglected non-motor symptoms of Parkinson’s which impact so much on a patient’s quality of life – symptoms such as pain, poor sleep, depression, anxiety, sexual dysfunction and autonomic problems. Two decades on, the newly launched King’s Parkinson’s Charitable Fund aims…
Grant to explore new epilepsy treatment for Tuberous Sclerosis Complex (TSC)
Dr Felix Chan awarded £174k grant to study Tuberous Sclerosis Complex (TSC) and epilepsy by Epilepsy Research UK. The new study will investigate lysine metabolism as a therapeutic target for epilepsy in TSC Research designed with TSC and epilepsy patient community through Tuberous Sclerosis Association and Epilepsy Research UK. A researcher based in Aston Institute for…
Parliamentary ABI reception attracts hundreds of attendees
UKABIF trustees and members attended an Acquired Brain Injury reception in Parliament hosted by Chris Bryant MP. Around 60 MPs from across the House attended to hear first hand from people living with an acquired brain injury, just what improvements need to be made. It was a wonderful opportunity for organisations to network and for…
Online auction for Newly Injured Scheme
Neurokinex, a specialist paralysis rehabilitation charity with sites at Gatwick, Hemel and Bristol, is running an online auction for two weeks from noon on Friday July 17th until noon on Friday July 31st to raise funds to safeguard the future of its Newly Injured Scheme. The auction includes a wide choice of lots including sports…
Hereditary Spastic Paraplegia (HSP) Support Group
News from The Hereditary Spatic Paraplegia Support Group
