Everything You Need to Know About Clinical Trials for CMT

Event Notes:

Join the CMT Research Foundation for an informative and timely webinar featuring Jenneen DeFiore, Vice President of Neuroscience at Thermo Fisher Scientific and a nationally recognized expert in the design and execution of clinical trials. For Jenneen, this topic is not only professional—it’s deeply personal. Her family lives with the impact of CMT, giving her a unique perspective that bridges science and lived experience. The moderator for this meeting is Susan Ruediger, a CMT patient, and the co-founder of the CMT Research Foundation.

Jenneen will walk through the clinical trial process in clear, accessible terms. She’ll explain common clinical trial terminology, share real-world examples from her own family’s experience participating in a CMT clinical trial, and provide an overview of the different trials currently underway for CMT. She’ll also discuss how individuals and families can express interest in participating in research. The webinar will conclude with a live Q&A session, giving attendees the opportunity to ask questions directly.