Hospice and Palliative Care in Duchenne: What it Really Means

Event Notes:

A Duchenne diagnosis means navigating complexity everyday, medical, emotional, educational, practical and social. Too often, families are expected to find answers alone, navigate systems without guidance and carry emptional weight in silence. The Action Duchenne Webinar Series 2026 exists to change that. This programme across the year will bring together expert insights, lived experience and compassionate facilitation to address the issues that matter most to the Duchenne community, when they matter most.

Our webinar on ‘Hospice and Palliative Care in Duchenne:What it Really Means’ will take place on Tuesday 23rd June from 6:00pm – 7:00pm