SMA Education Day 2025: addressing the emerging challenges in comprehensive SMA care

Event Notes:

The SMA Education Day is a focused one-day programme designed to address the evolving challenges in the comprehensive management of spinal muscular atrophy (SMA). Building on the foundations of the previous MasterClass, this updated course delves deeply into key areas such as respiratory care, palliative approaches, ethical dilemmas, and neurocognitive outcomes in treated SMA patients. It also explores the practicalities of implementing newborn screening and transitioning care from paediatric to adult services, with patient experiences interwoven throughout the programme.

Through an interactive format, including case discussions, ethical debates, and roundtable sessions, participants will engage in expert-led discussions and multidisciplinary collaboration, fostering a deeper understanding of complex clinical scenarios and innovative approaches to care.

Who is this course for?
This course is designed for healthcare professionals with experience in managing SMA, including paediatricians, paediatric neurologists, neonatologists, respiratory specialists, general neurology trainees, consultant neurologists, palliative care clinicians, specialist nurses, therapists, and allied health professionals. Attendees will have the opportunity to share best practices, discuss complex cases, and enhance their expertise, ultimately improving service delivery and ensuring high-quality, patient-centered care for individuals with SMA.

Sponsors:
This activity has been financially supported by sponsorship from Biogen Idec Limited. The sponsor has had no control over the educational content or organisation of this activity.