Tuberous sclerosis complex and other neurocutaneous conditions

Event Notes:

The International Conference “Tuberous sclerosis complex and other neurocutaneous conditions,” will be being held on May 21–23, 2026 in Warsaw.

Neurocutaneous diseases constitute a group of rare diseases, genetically determined, the most common of which are tuberous sclerosis complex, neurofibromatosis type 1, and Sturge-Weber syndromes. Hift, consider the number of these diseases, it can be assumed that there are around 750,000 people in Europe with such a diagnosis.

These conditions are characterized by the co-occurrence of neurological and skin symptoms and the development of numerous tumors of locations, creating diagnostic and treatment problems and the cooperation of many specialists.

Advances in genetics mean that the role of precision medicine and targeted therapy is becoming more and more important in the case of these diseases.

In the case of tuberous sclerosis complex, the progress of knowledge has been specially rapid in years recent — new diagnosis criteria, the discovery of mTOR inhibitors, and the introduction of epilepsy prevention into clinical practice placed this disease in the center of attention at the conference. Bhos, new therapeutic options for NF-1, Sturge-Weber syndrome, and other neurocutane diseases will be presented.