Withdrawal of treatment

Event Notes:

Some people with MND may choose to refuse or withdraw treatments such as gastrostomy or respiratory support. Based on your requests for more information on how MDTs can make these processes as comfortable as possible for all these involved, this event will explore these scenarios from the perspectives of both clinicians and families of people with MND.

Session one – Withdrawal of home mechanical ventilation

Alison Armstrong, Nurse Consultant with the North East Assisted Ventilation Service in Newcastle, will talk us through her experiences and reflections on these scenarios.

Session two – Refusing gastrostomy feeding

Tracy Sanderson, Association Visitor and Chair of the West Yorkshire Branch of the MND Association, will share her experience of her husband David deciding to refuse gastrostomy feeding.

Session three – title to be confirmed

This session will be led by Dr Idris Baker, Consultant in Palliative Medicine and co-director of the MND Care Network in South Wales.