On Thursday 16 January, 35 MPs or their representatives from across the UK attended the Parliamentary Neuro Reception hosted by The Neurological Alliance – the largest number of MPs or representatives to attend an Alliance event in its 30-year history. The event was being held to raise awareness of neurological conditions in Parliament, asking Parliamentarians to become a ‘Neuro Champion’. The event was also an opportunity to reflect on the 30 year history of the Neurological Alliance.
Following the General Election in July 2024 over half of all MPs have been elected for the first time. The Parliamentary Neuro Reception allowed MPs to meet people affected by neurological conditions face-to-face, gain insight into some of the challenges faced by the neurological community and connect with organisations supporting people affected by neurological conditions.
The event follows public action by The Neurological Alliance, during which people were asked to invite their MPs to attend the event to learn more about neurological conditions. Over 1,400 people across the UK wrote to their MPs. As a result 448 MPs received at least one letter asking them to attend the event.
The event was kindly sponsored by Baroness Fraser of Craigmaddie, Chief Executive of Cerebral Palsy Scotland, who spoke openly about the need for change in neurological services.
Speakers also included Paul Stevenson, a lived experience ambassador and Tourette syndrome advocate, recently featured in the Shaw Trust Disability Power 100 list, NHS England National Medical Director, Professor Sir Stephen Powis and Cath Stanley, Chief Executive of the Huntington’s Disease Association and chair of The Neurological Alliance.
Georgina Carr (pictured above), Chief Executive of The Neurological Alliance, said: “Dozens of MPs and Peers are now more aware and committed to addressing shortcomings in treatment and support for people with neurological conditions as a result of this event and the action taken by members and supporters beforehand. We’d like to thank our member organisations and everyone affected by neurological conditions for making this happen, and all the MPs who attended or expressed an interest.
With the UK Neuro Forum beginning its work this year, together with initiatives such as the NHS 10 year plan and NHS neuroscience transformation programme, a renewed Parliamentary support network provides a strong basis to hold Government to account on these initiatives.”
Alexion, the rare disease arm of Astra Zeneca, provided financial support for the event. Content for the event rested with the Neurological Alliance.
