Navigating Diagnosis and Grieving the Life Imagined: Part 1: Grieving the Life You Imagined and Finding Meaning in a New Reality

Event Notes:

Part 1 of this two-part series invites families to acknowledge and name the losses that come with a Duchenne diagnosis — not just practical ones, but the imagined future that must now be reimagined. We’ll explore how to talk with your child and their siblings, and offer strategies to build emotional resilience, cultivate meaning, and navigate the difficult transitions that lie ahead.