“You matter because you are you, and you matter to the end of your life” – dispelling the myths of hospice care (for people living with and affected by MND)

Event Notes:

Time: 11.00am – 12.30pm

Aim: To develop increased understanding of the role of hospice care for people living with and affected by MND.

Objectives:

• to explore of the range of services available through hospice care
• to explore the role of hospice services in good patient centred care
• to develop understanding of how people living with and affected by MND can be supported to positively consider using hospice services
• to explain how to connect people living with and affected by MND with hospice services
• to explore how hospice care supports the MDT.

By the end of the session participants will have:

• an awareness of the types of care which may be provided by a hospice
• an understanding of how hospice services can be used to meet patient centred goals
• increased confidence to talk to people living with and affected by MND about hospice care – challenging the perception that it is a place to go to die
• an understanding of how to refer people living with and affected by MND to hospice services
• an appreciation of how the hospice fits with the wider MDT.

Speakers: Claire Stockdale, Palliative Medicine Consultant and Lisa Sievwright, MND and Neuropalliative Specialist Therapist